Tornar-se pai/mãe de uma criança com transtornos graves do desenvolvimento

Abstract

The interest in research on parents of children with severe developmental disorders has known different focuses of interest over time, from a more psychopathological approach, interested in describing the negative aspects of the impact of having a child with disabilities, to the study of coping strategies used to deal with the situation, and the study of the strength and resilience mobilized by these parents. The big change, however, is that the concern about parents is not only because of the child, but also for what happens in their own development processes. This developmental perspective is addressed here to the construction of the fundamental attachment between mother/father and the baby, how this bond is broken, and how it can be reconstructed when the child has a severe disability diagnosis. Only the resumption of parents’ developmental process will enable them to perform their parenting in an emotionally appropriate and consistent manner, based on adequate responsiveness in everyday life situations. This view allows to open new interdisciplinary challenges about how to work on early intervention in child development and to a comprehensive understanding of the family centered intervention.